I am officially a free women!
yesterday was the end of my 4 plus months of rehab it was a little sad though because i became close to a lot of people there. After my three months of out-patient therapy i am now walking on level ground with short walks by myself and all other walks except the stores holding on to my parents arm. one of my last therapy sessions was at Target, i had to walk pushing a cart and find the items on my list \finding items i had help/ but that won't happen again any time soon because 30 minutes knocked me out for three days!
my 3 month doctor check up went very well, he doesn't think my breathing troubles are from surgery or my C2 tumor which is super great news!! no tumor growth where i had my surgery and the upper spine looked better.
my parents and i fly out in the morning to Florida to relax and celebrate!!
i hope to post some pictures and post more often now that time for play is back
i will see some of you on facebook, now that i understand it more!
have a great rest of your week everyone!
Tuesday, July 7, 2009
Monday, May 18, 2009
outpatient therapy and life of Amber update
I can not even begin to express the joys of the past month, WOW!
I have just started an 8 week 6 hour a week therapy session and wow how much I improve each week..
When I entered RHI back in the first week of March, I had hardly any movement in my left arm or leg, 2 weeks of intense 18 hours of OT AND PT brought back a lot of nerves in both my arm and leg that when I was discharged at the end of the month I could walk with a walker for short distances, I think my last walk then was 600 feet with the help of a walker . I could move my arm more than everyone thought I would since my doctor could not promise my arm would ever move again.. I owe A LOT of thanks to my in patient therapist Bill, Kristy and Angie for knowing what to do...fast forward 7 weeks of out patient therapy I am now walking short distances with just the hold of my support belt, doing 60lbs leg presses and taking 1000 steps in 10 minutes on a sit down stairmaster \which I am in love with but they cost 1,300 dollars.
My arm can almost be stretched straight back, I can reach my head and give high fives. I even got the joys of a good laugh boxing like they do on the Biggest Loser but I was sitting down but it was still great.
i started walking by myself in my house when i am not too tired! Thanks to my out patient therapist TINNETTE, kENDRA AND aARRON
it has been awhile since i have given an update on my eye so i will share a bit about that a month ago i had another laser treatment and had a check up last week as of right now my eye is not bleedng but i stillhave a little blood sitting around so we willbe watching it over the summer to make sure it does not start bleeding again but if it doesn't start again we can proceed with the cornea transplant my vision is still worsening though because my cataract keeps growing but the doctor would remove that as well
my spiritual life is growing as well thanks to Pastor Dan and his church, this is something i have wanted to settle since the events of how my first church experience turned out
Crestview Christian Church is a friendly, Godly place that has many opportunitis for me to help out there once i am back on my feet which is in return giving me a reason to work harder
thanks Pastor Dan!
I have just started an 8 week 6 hour a week therapy session and wow how much I improve each week..
When I entered RHI back in the first week of March, I had hardly any movement in my left arm or leg, 2 weeks of intense 18 hours of OT AND PT brought back a lot of nerves in both my arm and leg that when I was discharged at the end of the month I could walk with a walker for short distances, I think my last walk then was 600 feet with the help of a walker . I could move my arm more than everyone thought I would since my doctor could not promise my arm would ever move again.. I owe A LOT of thanks to my in patient therapist Bill, Kristy and Angie for knowing what to do...fast forward 7 weeks of out patient therapy I am now walking short distances with just the hold of my support belt, doing 60lbs leg presses and taking 1000 steps in 10 minutes on a sit down stairmaster \which I am in love with but they cost 1,300 dollars.
My arm can almost be stretched straight back, I can reach my head and give high fives. I even got the joys of a good laugh boxing like they do on the Biggest Loser but I was sitting down but it was still great.
i started walking by myself in my house when i am not too tired! Thanks to my out patient therapist TINNETTE, kENDRA AND aARRON
it has been awhile since i have given an update on my eye so i will share a bit about that a month ago i had another laser treatment and had a check up last week as of right now my eye is not bleedng but i stillhave a little blood sitting around so we willbe watching it over the summer to make sure it does not start bleeding again but if it doesn't start again we can proceed with the cornea transplant my vision is still worsening though because my cataract keeps growing but the doctor would remove that as well
my spiritual life is growing as well thanks to Pastor Dan and his church, this is something i have wanted to settle since the events of how my first church experience turned out
Crestview Christian Church is a friendly, Godly place that has many opportunitis for me to help out there once i am back on my feet which is in return giving me a reason to work harder
thanks Pastor Dan!
Monday, May 11, 2009
my adventure week
this past week I took tri by myself to my oldest sister Crystal's house while my parents flew out to Orlando to get my grandparents car but thy then decided to go to the beach for part of the days they aid they needed a vacatuiin from t past 6 month exprience. I was wishy washy on going to my sisters becuse she already has Madison who neds my sister to move around and feed and in a welchair plus an energetic 3 yar old. I knew it woud be hard to do anything with two of us in heelchairs I expected we wodn' be able to do much. I know it wipws ot my sister but he never complained .m M parents rely needed the ime away o we all mae sacrafics
I definately have more appreiation for my sister and paet which my mom now says is one reason she wanted to o away. THANKS CRYSTA FOR TAKING CARE OF ME!
My sister never gets to sit down, we were always running Madison around,
Unforunately with two of us needing wheelchair we did not get to go shopping like usual but Friday night Crystal and I got to go out a few hours to find my mom's mother's day present. I wanted to get my mom a diamond ring lucily we saw one in an ad that I liked so we took the Kohl's ad to Penys which had a better one. While at my sisters I learned to apprecite my mom and dad more so the ring was the right present to get her, my mom loves the ring
I could not play ball with Matthew which is extremely hard and sad for both of us, we do not bond as well now
to my family I thank and love you guys!
I definately have more appreiation for my sister and paet which my mom now says is one reason she wanted to o away. THANKS CRYSTA FOR TAKING CARE OF ME!
My sister never gets to sit down, we were always running Madison around,
Unforunately with two of us needing wheelchair we did not get to go shopping like usual but Friday night Crystal and I got to go out a few hours to find my mom's mother's day present. I wanted to get my mom a diamond ring lucily we saw one in an ad that I liked so we took the Kohl's ad to Penys which had a better one. While at my sisters I learned to apprecite my mom and dad more so the ring was the right present to get her, my mom loves the ring
I could not play ball with Matthew which is extremely hard and sad for both of us, we do not bond as well now
to my family I thank and love you guys!
Thursday, April 30, 2009
tipbids of information
I HAVE BEEN OUT OF REHAB 30 DAYS NOW, IT IS GOING WELL PHYSICALLY BUT MY I AM DEALING WITH WHAT WILL I DO NOW SYNDROME. I NEED SOME SERIOUS PRAYER ON THIS AS WELL AS MY BREATHING MY OXYGEN LEVELS DIP WHEN I SLEEP SO SINCE MY FIRST NIGHT AT REHAB I HAVE HAD TO USE OXYGEN BUT I STILL HAVE MOMENTS OF DIPS. PLEASE PRAY IT IS ONLY GOING TO BE AT NIGHT.
IN MY LAST POST I FORGOT TO THANK SALLY AND TRICIA FOR THEIR FREQUENT VISITS AND SUPPORT, YOU GUYS ROCK!
IN MY LAST POST I FORGOT TO THANK SALLY AND TRICIA FOR THEIR FREQUENT VISITS AND SUPPORT, YOU GUYS ROCK!
Monday, April 27, 2009
WHERE DID AMBER GO?
WOW~ NOW SIGH, I CAN'T EVEN BEGIN TO TELL YOU ALL THAT HAS GONE ON SINCE MY LAST POST BACK IN JANUARY!!!!!!!!!!!!
FIRST WE WILL SHARE THE GOODS NEWS OF FEBUARY, MY OLDEST SISTER CRYSTAL AND HER HUSBAND JASON ARE EXPECTING ANOTHER BABY IN AUGUST, I WAS TOLD IN A VERY SPECIAL WAY. MY MOM TAUGHT MATTHEW HOW O SIGN MOMMY AND BABY HE IS THE LOVE OF MY LIFE ALONG WITH MADISON AND BABY IT.
NOW MY DRAMA, TWO WEEKS INTO JABUARY MY LEFT LEG AND ARM TOTALY STOPPED WORKING, MY NEUROLOGIST AID SEE A PAIN SPECIALIST ITS B/C YOU HURT SO BAD, DID THA MY PAIN DIED DOWN A FEW WEEKS BUT I JUST KEPT GETTING WEAKER, MY NEUROLOGIST MA ME COME SEE HER A WEEK LATER. THIS WAS AT THE END OF FENUARY, SHE COULDN'T BELIEVE HOW WEAK I WAS I CULD NOT CONTROL ANY OF MY LEFT SIDE BY THIS POINT, SHE WANTED TO UY ME IN THE HOSPITAL ON THE SPOT BUT MY PAENTS , HATHER AND JOSH HAD PLANNED A TRIP TO VEGS IN OCTOBER FR LATER THAT WEEK SO I SAID I AM GOING ON VACATION FIRST SHE SAID IT WAS OK AND THAT THE DAY AFTER YOU GET HOME YOU HAVE TO BE ADMITTED FOR TEST AND A FASTER WAY TO GET PT. SHE WAS THINKING IT WAS MY MEDICINES. DID MY DOCTOR CARE I WAS IN THERE? I DONT THINK SO! ANOTHER NEUROLOGIST TOOK CONTROL, MY NEUROGIST ALWAYS SAID NO UMOR GROWTH IT IS NOTHING. NEW DOCTOR COMES IN THE NEXT MORNING THT UMOR IS TO BIG YOU NEED SURGERY ON C2,4,5,,6 WHICH MEANS SPINAL CORD. I KNEW HOW RISKY MY C2 TUMOR WAS B/C THAT IS WHERE CHRISTOPHER REEVES TRAUMA WAS AND WE ALL KNOW HIM PLU I READ HIS BOOK. LATER ON THURSDAY MARCH 5 A SURGOEN CAME IN, I NEED SURGERY THE NEXT DAY, OR NEXT WEEK AT FIRST SAID NO TO NEXT DAY B/C I DID NT THINK ENOUG PEOPE WOULD KNOW TO PRAY BT IN THE END MY PARENTS AND THE DOCTOR AND I SAID OK. AT THS POINT EVERYONE IN MY FAMILY WAS VERY SCARED, MY SISTERS WERE CALED TO COME ASAP. MY FAMILY FRIEND ASKED HER PASTOR IF HE WOULD COME TALK TO TALK TO ME. PASTOR DAN, ONE OF THE SWEETEST PEOPLE I HAVE EVER MET CAME WHILE I WAS IN THE MRI BUT HE DIDN'T LEAVE WHEN I GOT BACK HE EVEN HELPED MY MOM MOVE ME WHICK WAS BASICALLY AT THIS POINT A DRAGGING. I ONLY SAD FUR ORDS TO HIM THOSE BEING WILL I GO TO HEAVEN HE LOOKED ME IN MY EYES AND SAID WITHOUT A DOUBT AT THIS POINT I CRED AND HE RAYED SOMETHING GEAT B/C I FELT TOTAL PEACE ABOUT DYING BUT THEN MY FAMILY CAME AND I SAW MY KIDS AND FAMILY ALL TOGETHER AND I WAS NT READY TO GO, MOSTLY NO ONE SPOKE BUT MATTHEW ASKING WHERE IS THE DOCTOR WHO IS GOING TO HELP AMBER WALK AGAIN? HE'S SO LOVING. THE SURGERY WAS TO START AT 10 SO MY FAMILY PLANNED ON THAT NO THEY CHANGE IT AT 6AM..I JUST KEPT SAYING IT WAS WRONG.MY PARENTS CALLED MY SISTERS AND I TOLD THEM I LOVED THEM AND THEY TOOK ME TO THE OR BUT NO ONE WAS IN THERE SO I GOT TO GO BACK TO SEE MY PARENTS AND MY SISTER AND AUNT AND UNCE BY THEN I WAS FINE.IN SURGERY MY DOCTOR OPENED ME UP AND SAW MY IMPLANT THAT DIDN'T WORK AND DECIDED ONLY TO DEBULK THE C 4,5,6 TUMORS THAT WERE NOT AS RISKY. IN ICU I GT WOKEN UP BY MY LITTLE GUY AMBER CAN YOU WALK YET? I SAID NOT YET BUDDY TWO HOURS LATER MY LEG STARTED MOVING AGAIN! FOUR DAYS LATER I WAS MVED TO RIH A REHAB PLACE. I UNDERWENT INTENSE THERAPY CLOSE TO 16 HOURS A WEEK OF PT AND OT I DID SO WELL I CAME HOME FAST. IVE BEEN HOME ONE MONTH, I TOOK ABOUT 30 STEPS UNDER MY OWN POWER SUNDAY. MY ARM CAN REACH MY NOSE. I CAB TYPE AND FEED MYSELF AGAIN! I WANT TO THANK MY MOM AND DAD FOR THEIR LOVE AND SUUPORT AND SAXEFICES, THE BEST SPECIAL NURSE DONNA WHO EVEN THOUGH I AM HOME IS STIL NURSING ME BACK TO HEALTH OVR THE COMPUTER EVERYDAY. I WILL NEVER FORGET YOU GUYS!!!!!!!!!!!!!! LOVE YOU! I STILL DO REHAB TICE A WEEK AND CAN TEL THE DIFFERENCE DAILY.
BIG THANKS TO GOD FOR SPARING MY LIFE ON EARTH YET AGAIN FOR HIS PURPOSE
PLEASE KEEP PRAYING I CA ONTINUE TO CLIMB THE MOUNTAINS
LOVE YOU ALL!
FIRST WE WILL SHARE THE GOODS NEWS OF FEBUARY, MY OLDEST SISTER CRYSTAL AND HER HUSBAND JASON ARE EXPECTING ANOTHER BABY IN AUGUST, I WAS TOLD IN A VERY SPECIAL WAY. MY MOM TAUGHT MATTHEW HOW O SIGN MOMMY AND BABY HE IS THE LOVE OF MY LIFE ALONG WITH MADISON AND BABY IT.
NOW MY DRAMA, TWO WEEKS INTO JABUARY MY LEFT LEG AND ARM TOTALY STOPPED WORKING, MY NEUROLOGIST AID SEE A PAIN SPECIALIST ITS B/C YOU HURT SO BAD, DID THA MY PAIN DIED DOWN A FEW WEEKS BUT I JUST KEPT GETTING WEAKER, MY NEUROLOGIST MA ME COME SEE HER A WEEK LATER. THIS WAS AT THE END OF FENUARY, SHE COULDN'T BELIEVE HOW WEAK I WAS I CULD NOT CONTROL ANY OF MY LEFT SIDE BY THIS POINT, SHE WANTED TO UY ME IN THE HOSPITAL ON THE SPOT BUT MY PAENTS , HATHER AND JOSH HAD PLANNED A TRIP TO VEGS IN OCTOBER FR LATER THAT WEEK SO I SAID I AM GOING ON VACATION FIRST SHE SAID IT WAS OK AND THAT THE DAY AFTER YOU GET HOME YOU HAVE TO BE ADMITTED FOR TEST AND A FASTER WAY TO GET PT. SHE WAS THINKING IT WAS MY MEDICINES. DID MY DOCTOR CARE I WAS IN THERE? I DONT THINK SO! ANOTHER NEUROLOGIST TOOK CONTROL, MY NEUROGIST ALWAYS SAID NO UMOR GROWTH IT IS NOTHING. NEW DOCTOR COMES IN THE NEXT MORNING THT UMOR IS TO BIG YOU NEED SURGERY ON C2,4,5,,6 WHICH MEANS SPINAL CORD. I KNEW HOW RISKY MY C2 TUMOR WAS B/C THAT IS WHERE CHRISTOPHER REEVES TRAUMA WAS AND WE ALL KNOW HIM PLU I READ HIS BOOK. LATER ON THURSDAY MARCH 5 A SURGOEN CAME IN, I NEED SURGERY THE NEXT DAY, OR NEXT WEEK AT FIRST SAID NO TO NEXT DAY B/C I DID NT THINK ENOUG PEOPE WOULD KNOW TO PRAY BT IN THE END MY PARENTS AND THE DOCTOR AND I SAID OK. AT THS POINT EVERYONE IN MY FAMILY WAS VERY SCARED, MY SISTERS WERE CALED TO COME ASAP. MY FAMILY FRIEND ASKED HER PASTOR IF HE WOULD COME TALK TO TALK TO ME. PASTOR DAN, ONE OF THE SWEETEST PEOPLE I HAVE EVER MET CAME WHILE I WAS IN THE MRI BUT HE DIDN'T LEAVE WHEN I GOT BACK HE EVEN HELPED MY MOM MOVE ME WHICK WAS BASICALLY AT THIS POINT A DRAGGING. I ONLY SAD FUR ORDS TO HIM THOSE BEING WILL I GO TO HEAVEN HE LOOKED ME IN MY EYES AND SAID WITHOUT A DOUBT AT THIS POINT I CRED AND HE RAYED SOMETHING GEAT B/C I FELT TOTAL PEACE ABOUT DYING BUT THEN MY FAMILY CAME AND I SAW MY KIDS AND FAMILY ALL TOGETHER AND I WAS NT READY TO GO, MOSTLY NO ONE SPOKE BUT MATTHEW ASKING WHERE IS THE DOCTOR WHO IS GOING TO HELP AMBER WALK AGAIN? HE'S SO LOVING. THE SURGERY WAS TO START AT 10 SO MY FAMILY PLANNED ON THAT NO THEY CHANGE IT AT 6AM..I JUST KEPT SAYING IT WAS WRONG.MY PARENTS CALLED MY SISTERS AND I TOLD THEM I LOVED THEM AND THEY TOOK ME TO THE OR BUT NO ONE WAS IN THERE SO I GOT TO GO BACK TO SEE MY PARENTS AND MY SISTER AND AUNT AND UNCE BY THEN I WAS FINE.IN SURGERY MY DOCTOR OPENED ME UP AND SAW MY IMPLANT THAT DIDN'T WORK AND DECIDED ONLY TO DEBULK THE C 4,5,6 TUMORS THAT WERE NOT AS RISKY. IN ICU I GT WOKEN UP BY MY LITTLE GUY AMBER CAN YOU WALK YET? I SAID NOT YET BUDDY TWO HOURS LATER MY LEG STARTED MOVING AGAIN! FOUR DAYS LATER I WAS MVED TO RIH A REHAB PLACE. I UNDERWENT INTENSE THERAPY CLOSE TO 16 HOURS A WEEK OF PT AND OT I DID SO WELL I CAME HOME FAST. IVE BEEN HOME ONE MONTH, I TOOK ABOUT 30 STEPS UNDER MY OWN POWER SUNDAY. MY ARM CAN REACH MY NOSE. I CAB TYPE AND FEED MYSELF AGAIN! I WANT TO THANK MY MOM AND DAD FOR THEIR LOVE AND SUUPORT AND SAXEFICES, THE BEST SPECIAL NURSE DONNA WHO EVEN THOUGH I AM HOME IS STIL NURSING ME BACK TO HEALTH OVR THE COMPUTER EVERYDAY. I WILL NEVER FORGET YOU GUYS!!!!!!!!!!!!!! LOVE YOU! I STILL DO REHAB TICE A WEEK AND CAN TEL THE DIFFERENCE DAILY.
BIG THANKS TO GOD FOR SPARING MY LIFE ON EARTH YET AGAIN FOR HIS PURPOSE
PLEASE KEEP PRAYING I CA ONTINUE TO CLIMB THE MOUNTAINS
LOVE YOU ALL!
Tuesday, January 13, 2009
Neurologist visit
Today was the day I finally got in to see my wonderful doctor (yes there is sarcasim in that )I took an hour to be heard :)) 8 of my 10 fingers are numb to start...she thinks when fwll Ipusd ed my tendons back and now have carpel tunnel so I will bewearing splints for two weeks and if that doesn't help I will need to see a wrist specialist..next my walki ng the left side is a lot weaker and hurts, she thinks it is sort of like my wrist but in my kneeeeeee so while sitting I am not to put pressure on my leg
She does not think anything is spinal cord tumor related.. i also got a stronger pain medicine..
that's about all
thanks to all those who pray for me!!!!!!!!!!!!!
She does not think anything is spinal cord tumor related.. i also got a stronger pain medicine..
that's about all
thanks to all those who pray for me!!!!!!!!!!!!!
Friday, January 9, 2009
Christmas Pixs
Here are some professional pictures. Unfortunately,
Heather and Josh were in New Jersey that weekend.
Heather and Josh were in New Jersey that weekend.
laser treatment
My laser treatment went smoothly on Wednesday he thinks he got a lot of the blood but we will see in two weeks what my eye looks like. My eye was noy too dry since we use more lube and gel instead of myself constantly putting drops in. I have not been seeing that much better but I do notice less blood floating around which is a good sign!!!!!!!!!!
I am now going to try to post some Christmas pixs!
I am now going to try to post some Christmas pixs!
Tuesday, January 6, 2009
I'm terrible at thi s blogging thing
Hi,
Yep, another few weekshave slipped me by. Mostly there has just not been anything new or interesting to report and
I am not even sure people read this since I am so scattered in writting posts. The New Year has started off very rough for me, my scan showed nothing new or changed which is the opposite of what everyone on my medical case ( neurologist, her nurse, my parents and myself) were expecing and wanting. Basically I am kind of doomed with nothing being able to be done for me without making it all even worse. I can only walk solo while downstairs at my house and am wheelchair depentant for long walking or outings. It has become very depressing for me lately with basically only parent and sister and a few emails worth of support.
I will be undergoing my second laser treatment on my eye tomorrow but since one hand of fingers are numb I have been unable to do my own eye drops so it will be interesting t o see how my eye looks, we try to do more lube and gel (thicker drops)
please pray for me and my family!
Yep, another few weekshave slipped me by. Mostly there has just not been anything new or interesting to report and
I am not even sure people read this since I am so scattered in writting posts. The New Year has started off very rough for me, my scan showed nothing new or changed which is the opposite of what everyone on my medical case ( neurologist, her nurse, my parents and myself) were expecing and wanting. Basically I am kind of doomed with nothing being able to be done for me without making it all even worse. I can only walk solo while downstairs at my house and am wheelchair depentant for long walking or outings. It has become very depressing for me lately with basically only parent and sister and a few emails worth of support.
I will be undergoing my second laser treatment on my eye tomorrow but since one hand of fingers are numb I have been unable to do my own eye drops so it will be interesting t o see how my eye looks, we try to do more lube and gel (thicker drops)
please pray for me and my family!
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