a whole lot lighter!

So here is some good news on my week last week and a helping of some not so good news to0!

I've been walking almost daily since it's been warm enough too outside but prior to the nice weather I started wlking at the mall and at Target and wal mart instead of using my wheel chair to get around. after my trip to the Bahamas in Feb I was up to my highest weight ever and excperiencing some swallowing troubles. I had a swallowing culture done and it showed where I had my tumor in my esphagus like 10 years ago was now not shutting when I was done eating and my food was coming back up making it feel like everything I ate was stuck. After a few months of getting sick everyday. Four doctors kept mentioning all my thousands of problems would be better if I just lost weight! not an easy task when you don't exercise right?!

so in mid Feb my friend Josh started taking me to the mall to walk, everytime i went i walked a bit further. Once i started doing this, i just stopped using my wheel chair Id just walk holding o9nto someones arm or pushing a cart or something. I had more energy and kept getting more strength but I hadn't changed my eating habits yet so I still wasn't reeally losing weight. Josh then told me abour counting calories so I started doing that and I kept walking. Once the weather turned warmer outside I started walking everyday by myself, it felt good to do something all by myself for once!

last week when i weighed in I had hit the over 20 pounds lost mark!!

I was bad this past weekend but there is nothing this week that will habe a weigh in AND today I started counting my calories again and getting back on track!

my bad news is on Sunday during my walk my right side didn't feel right so I decided to cross the street to come home (I normally do not cross any streets i just turn around and walk the long way home) I mis timed my step onto the curb and flew forward from losing my balance. I scrapped up my knees pretty well and my right shoulder and my left arm *both surgwery spots) have not been feeling very well. please pray I didn't damage anything.. today is the first time I've typed on a computer and it's been a slow paindful process!

however, I've walked everyday! just not by myself!

hope everyone has a great day!

please be thinking on my neighbor Teresa Rohler whop needs to have surtery on her rotator cuff pm Monday, she'll be out of commissiopm up to 6 weeks!

health status of the week

so I've been having trouble with my vision the last couple months. My eye started bleeding again in early January, luckily I've only dealt with minor issues associated with it. I had another laser treatment that made it stop bleeding but I've still got a little blood left but it hasn't changed for the worse in awhile. The last month my eye has been going super cloudy and blurry like clock work at 7pm. I have been going to my cornea specialist still every one or two weeks for the last 5 years! I really like the doctor though so that helps!

Last week when I went I asked about my eye giving out, he thought maybe the cornea moves when I am tired or it just gives out for over use, but early last week I noticed if I put my pressure drop in earlier my eye didn't go bad so when I went last week to the eye doctor my pressure was REALLY high (35) my norm is around 18. For the last week I've been using different medicine to keep the blood from worsening and a pressure drop still and my eyesight hasn't given out in about 5 days!! my vision was better today too, i saw 20/60 with the naked eye no special shield that hasn't happened since about December! my pressure was better today but still high but it was lower that is the good point!

I've been feeling weary though. tired of being deaf, visually impaired and in pain please send us all some good positive vibes or prayers please.. it's hard to talk about it to those i love the most who want/need me here but I've been fighting now for over 16 years and the last 4 I've been in a ton of pain, deaf and visually impaired, before I lost my vision I could lip read at a 85% accuracy which made it seem like I wasn't deaf at times, I felt included in conversations for sure!

Im tired of people talking around me but no one letting me know enough to feel apart of the conversations.

Good news I got my laptop fixed today, should be able to post More now. I've been sharing the computer room with Noah and Megan where the crib is at and with my eye giving out at night I've not had much computer time,

I just might be boring that's all!

have a great evening everyone!

l0ve
Me

wacky cam

here are some crazy pictures my mom and I took while waiting two hours to be seen by my neurosurgeon a few weeks ago!

Happy 1st birthday Noah!

This time one year ago today my sister Heather was in the hosptial trying to get Noah out!

Today is a blessing Noah is ONE year old!

I can't even put into words what this little guy means to me!!


here is a picture of me and Noah Andrew from his birthday lunch at Pepe's this afternoon, ZI wish I had the video that my sister made with her iphone when they sang happy birthday to him but most of who reads this also knows me on Face book or Heather the video is on FB on my sisters profile, check it out!

Noah and ME
Pix didn't work!!

Love you the light of my life! Aunt Amber

My MRI rresults

well i had an MRI last week.. just to see how tumors looked, I have still got good strength my onlu ptoblem is the pain managementm with the sun shinning today my pain has been better though. still there with it's annoying presence though. no change really with all my ttumors they did my brain this time since I've got a few brain tumors too.. i have got one on my sensory nerbe which is probably causing the pain in my face and left side of my neck as well as one or all of my tumors causing me to get dizzy at times.

it's not fun at all but I'm still strong physicallu for all the tumors Ido have so that is a blessing!!

it's not easy but things are ok for now i guess.

I hope I can get into a pain clinic this summer to try to find better pain vontrol medicines. I'm on two now I've been taking one of them more often. I've been taking about 6 pain pills a day to even dent the outcome some days, speaking of pain pillds it is time for one now!

I've got some Florida pictures to post on here from my three day trip to Orlando tro get my grandparents home. will post those soon.

please be praying and thinking about me and my damily, it is not easy for anby of us, my parentws have to take me to my doctors all the time and then we've got Noah a lot


Tomorrow is Noah's first birthday! i'm going to post tomorrow just to make a NOah page!!

take care all!